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Swanky Kentucky Derby party in Boston raises money for a rare disease
03 May 2025 23:23 GMT
While the official Run for the Roses captivated crowds at Churchill Downs, the spirit – and fashion – of the Kentucky Derby galloped into Boston's Seaport on Saturday.
At Moxies Boston Seaport restaurant, hundreds gathered not just to celebrate the …
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She lost a baby patient 14 years ago as a junior doctor – now she fights to save others from rare diseases
03 May 2025 00:20 GMT
… CNA Women.
More well-known rare diseases include Down syndrome, and achondroplasia … , and developmental or learning delays.
Rare disease can affect any body part …
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Biogen’s Q1 revenue soars past estimates as rare disease pivot pays off
01 May 2025 20:22 GMT
… , spurred by strong sales of rare disease assets amid a sales dropoff … when I look at the rare disease business […] we actually have a … added.
Alongside Skyclarys, Biogen’s rare disease business is headed by spinal …
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Biogen’s results beat estimates on strength in rare disease drugs
01 May 2025 13:55 GMT
… , as strong demand for its rare disease drugs helped offset declining sales … $953 million, while sales of rare disease drugs, including Skyclarys and Spinraza …
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Vora Ventures Acquires Hive Networks to Expand Global Impact on Rare Disease Outcomes Through Learning Health Networks
01 May 2025 12:00 GMT
… Platform to improve outcomes for Rare Diseases
CINCINNATI, OH, UNITED STATES, May …
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Biogen's results beat estimates on strength in rare disease drugs
01 May 2025 11:04 GMT
… , as strong demand for its rare disease drugs helped offset declining sales …
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Retiring country music legend battling rare disease
01 May 2025 10:08 GMT
Alan Jackson will go down as one of the greatest country music stars of all-time when his career is through.
And, sadly, the world is closing in on Jackson’s days onstage coming to an end. His final scheduled show on his farewell tour is slated for May 17 …
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Boy, 4, given 'death sentence' from rare disease receives incredible breakthrough
30 Apr 2025 22:32 GMT
… not treated. Those with the rare disease cannot fight off infections because …
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Integrating Multiomics Analysis in Cancer and Rare Disease Research
30 Apr 2025 13:06 GMT
… multiomics approaches transforming oncology and rare disease research
Hear how whole-genome … and diagnosis for cancer and rare disease.
Discover the multiomics approaches … transforming oncology and rare disease research
Hear how whole- …
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Why son's diagnosis spurred North Wales family on to set up website on rare disease
30 Apr 2025 14:39 GMT
Leader Live (sister website to The Messenger) reporter Arron Evans and his wife Georgina, who live on Anglesey, welcomed son Ffredi Fôn into the world last April.
However, although it looked as though he was initially doing really well, it later became …