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- Neurofibromatosis

Neurofibromatosis Newsletter

RAS-MAPK inhibition halts spinal deformity in neurofibromatosis type 1 mouse model 14 Jan 2026 17:28 GMT
… the most serious complications of neurofibromatosis type 1 (NF1), a genetic … in a mouse model of neurofibromatosis type 1. Bone Research. doi …
A time to be kind: Local nonprofit brightens holiday season for families battling neurofibromatosis 30 Dec 2025 17:30 GMT
… families across the country battling neurofibromatosis (NF) are receiving some well … whatever holiday they may celebrate.” Neurofibromatosis is a group of genetic … 100,000 people suffer from neurofibromatosis in the U.S. Each …
Clarifying role of osteoblasts and RAS-MAP signaling in neurofibromatosis type 1 24 Dec 2025 17:37 GMT
… the NF1 gene lead to neurofibromatosis type 1, which often leads …
Alexion’s Koselugo approved in US for adults with neurofibromatosis type 1 21 Nov 2025 05:52 GMT
… treatment of adult patients with neurofibromatosis type 1 (NF1) who have …
<![CDATA[FDA Approves Selumetinib for Adults With Neurofibromatosis Type 1]]> 21 Nov 2025 03:59 GMT
… the treatment of adults with neurofibromatosis type 1 (NF1) who have … the US for adults with neurofibromatosis type 1. News release. AstraZeneca … of selumetinib in adults with neurofibromatosis type 1 and symptomatic, inoperable …
Alexion, AstraZeneca Rare Disease Koselugo gets USFDA nod for neurofibromatosis type 1 21 Nov 2025 01:35 GMT
… treatment of adult patients with neurofibromatosis type 1 (NF1) who have …
<![CDATA[Selumetinib Is Approved for Adults With Neurofibromatosis Type 1 With Plexiform Neurofibromas]]> 20 Nov 2025 05:21 GMT
… FDA approval for adults with neurofibromatosis type 1 (NF1) who have … New FDA-Approved Drug for Neurofibromatosis. Indian Dermatol Online J. 2024 …
FDA approves selumetinib for adults with neurofibromatosis type 1 with symptomatic, inoperable plexiform neurofibromas 19 Nov 2025 16:19 GMT
… Pharmaceuticals LP) for adults with neurofibromatosis type 1 (NF1) who have … central review (Response Evaluation in Neurofibromatosis and Schwannomatosis criteria). Duration of …
Patient-led group provides social, community support for neurofibromatosis sufferers 15 Nov 2025 10:09 GMT
… a rare genetic condition called neurofibromatosis have come together to provide … formed a group, called the Neurofibromatosis Society (NFS) Singapore, which was … Registry of Societies in August. Neurofibromatosis, or NF, is a rare …
EU Approves Alexion’s Koselugo for Adults with Neurofibromatosis Type 1 29 Oct 2025 13:26 GMT
… (PN) in adult patients with neurofibromatosis type 1 (NF1). This marks …

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