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DAILEY, Angela Dec 17, 1950 - Dec 6, 2025
13 Dec 2025 03:21 GMT
… . Angela lived her life with Epidermolysis Bullosa Simplex (EBS), a skin fragility …
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WATCH: Hollywood star Colin Farrell gives Christmas boost to Laois woman's story
12 Dec 2025 21:35 GMT
… with the debilitating skin condition Epidermolysis Bullosa (EB).
The pair have made …
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I Survived a Dangerous and Painful Skin Disorder
11 Dec 2025 21:22 GMT
… .”
Torres was born with dystrophic epidermolysis bullosa (EB), a condition affecting three … girlfriend, who also has dystrophic epidermolysis bullosa.
“There are probably something like …
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Bushwacka launches festive boyband tribute for charity
11 Dec 2025 21:58 GMT
… charity supporting people living with epidermolysis bullosa (EB), often called “Butterfly Skin …
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<![CDATA[Transformative Advances This Year and Beyond]]>
11 Dec 2025 14:47 GMT
… therapy for recessive dystrophic epidermolysis bullosa (RDEB), was approved … TAMES-02 (TolaSure; BioMendics):Epidermolysis bullosa simplex trial progressing, offering hope … for patients with recessive dystrophic epidermolysis bullosa (RDEB). News release. …
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Abeona Therapeutics® Announces New Qualified Treatment Center for ZEVASKYN® in Texas
11 Dec 2025 12:30 GMT
… assistance. About recessive dystrophic epidermolysis bullosa
Recessive dystrophic epidermolysis bullosa (RDEB), a rare blistering … pediatric patients with recessive dystrophic epidermolysis bullosa (RDEB). Important Safety Information
Serious …
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<![CDATA[2025 FDA dermatology approvals: A new gene therapy and two targeted therapies]]>
10 Dec 2025 04:58 GMT
… Therapy Approved for Recessive Dystrophic Epidermolysis Bullosa
A notable approval for a … therapy for treating recessive dystrophic epidermolysis bullosa (RDEB), a rare, inherited … D., co-director of the Epidermolysis Bullosa Clinic at Children’s Hospital …
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Tough Tilly Day returns to Moama
10 Dec 2025 06:55 GMT
… year supporting those affected by epidermolysis bullosa, at Perricoota Station.
The family …
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First Patient With RDEB Treated With New Gene Therapy
10 Dec 2025 06:28 GMT
… a patient with recessive dystrophic epidermolysis bullosa (RDEB) received prademagene zamikeracel (pz …
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Tabletop sale returns to Quesada in aid of local ‘Butterfly Children’
09 Dec 2025 10:57 GMT
… charity supporting people living with epidermolysis bullosa (EB), often known as “Butterfly …