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- Epidermolysis Bullosa

Epidermolysis Bullosa Newsletter

Abeona Therapeutics® Announces ABO-503 Gene Therapy for X-linked Retinoschisis (XLRS) Selected by FDA for Rare Disease Endpoint Advancement (RDEA) Pilot Program 13 Oct 2025 11:30 GMT
… pediatric patients with recessive dystrophic epidermolysis bullosa (RDEB). The Company’s fully …
Survey: Epidermolysis Bullosa Patients Frequently Use Cannabis for Symptom Management 25 Sep 2025 17:35 GMT
Chicago, IL: Patients with epidermolysis bullosa (EB), a rare blistering skin … of the study, “Cannabinoids for epidermolysis bullosa symptom management: A survey,” appears …
Consistency in the Chaos: FDA Approvals Within Average Range as Q4 Kicks Off 13 Oct 2025 05:23 GMT
… ones for alkaptonuria, recessive dystrophic epidermolysis bullosa and phenylketonuria. On the other …
FDA expands B-VEC label to include patients from birth with dystrophic epidermolysis bullosa 15 Sep 2025 22:08 GMT
… patients from birth with dystrophic epidermolysis bullosa, broadening access beyond the prior … patients from birth with dystrophic epidermolysis bullosa (DEB), expanding on the … Study of Patients with Dystrophic Epidermolysis Bullosa. Am J Clin Dermatol. …
Krystal Biotech's B-VEC for Dystrophic Epidermolysis Bullosa Gets Expanded FDA Label 15 Sep 2025 17:53 GMT
… patient population to include dystrophic epidermolysis bullosa (DEB) patients from birth. Patients … Study of Patients with Dystrophic Epidermolysis Bullosa. Am J Clin Dermatol. 2025 …
Emma was born with a painful condition that leaves her skin as delicate as tissue paper - but her uplifting new book tells of a romantic dance at the debs, a friendship with Colin Farrell and a chance meeting (kind of!) with Ed Sheeran 12 Oct 2025 10:10 GMT
… longest living Irish person with Epidermolysis Bullosa (EB), a rare and excruciating … longest living Irish person with Epidermolysis Bullosa (EB), is pictured with her …
DEBRA and Queen Mary partner to advance epidermolysis bullosa drug development 21 Aug 2025 11:43 GMT
… at advancing drug development for epidermolysis bullosa (EB). The research collaboration will …
Thousands gather in Kansas City parade to honor 3-year-old Tucker Langford 12 Oct 2025 06:30 GMT
… a rare skin condition called epidermolysis bullosa, which makes his skin as … a rare skin condition called epidermolysis bullosa, which makes his skin as …
Thousands gather for ‘Tucker’s Parade’ to support 3-year-old on hospice 12 Oct 2025 04:27 GMT
… . Tucker has been fighting dystrophic epidermolysis bullosa (DEB), also known as “butterfly … has been bravely fighting dystrophic epidermolysis bullosa since he was born.(KCTV5 …
BioMendics Launches TAMES-02 Clinical Trial for Innovative Epidermolysis Bullosa Simplex Therapy 07 Aug 2025 14:18 GMT
… with generalized intermediate to severe Epidermolysis Bullosa Simplex (EB Simplex). EB Simplex …

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