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Health care costs for people with rare diseases have been underestimated, study shows
23 Oct 2021 03:39 GMT
… with a rare disease exceeded costs for non-rare diseases patients of … rare disease at a young age and because most rare diseases are serious conditions, rare disease … than those without rare diseases.
Such commonalities among rare disease patients could point …
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NIH study suggests people with rare diseases face significantly higher health care costs
22 Oct 2021 20:32 GMT
… with a rare disease exceeded costs for non-rare diseases patients of … rare disease at a young age and because most rare diseases are serious conditions, rare disease … than those without rare diseases.
Such commonalities among rare disease patients could point …
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375 procedures done in last five years to treat rare disease that affects food pipe: Ganga Ram hospital
22 Oct 2021 16:50 GMT
… of life.
It is a rare disease that occurs in one in …
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Roundup: Alnylam launches symptom tracker app for rare disease, UK startup raises £1.2M for mental fitness platform and more briefs
22 Oct 2021 14:15 GMT
… launches symptom tracker app for rare disease
Alnylam Pharmaceuticals has launched a … in the UK with the rare disease ATTR amyloidosis.
The STAR app …
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10-year-old Chattanooga boy fights rare disease associated with COVID-19
22 Oct 2021 03:32 GMT
… through the fear from this rare disease and its attack on his …
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Heartbreak as 'beautiful' Shiremoor boy Austin, 2, dies of rare disease in mum's arms
21 Oct 2021 17:58 GMT
Lying in a hospice bed, Courtney Lane clutched onto her "little king" as he tragically took his final breaths. Two-year-old Austin-Lea could fight on no more after spending almost all his short life battling Infantile Sandhoff Disease - a rare …
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13 Hospitalized, One Dead as Rare Disease From Rat Urine Plague New York City
21 Oct 2021 03:45 GMT
New York City is dealing with a rare bacterial disease carried by rat urine. So far this year, not less than 15 people have been infected, with about 13 admitted to hospitals and one dead.
(Photo : Getty Images)
Leptospirosis
Leptospirosis is a zoonotic …
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New online challenge aims to raise awareness of rare disease
21 Oct 2021 00:52 GMT
… Ashkenazi Jewish heritage. "A rare disease is considered rare if there … can imagine, even within a rare disease category we are ultra-rare …
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Stealth receives Refuse to File letter for rare disease candidate; shares drop 24%
20 Oct 2021 12:27 GMT
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Spinal Muscular Atrophy – A Rare Disease
20 Oct 2021 06:51 GMT
The image of a girl being carried up a flight of stairs by her mother is how thousands of Bhutanese became aware of Spinal Muscular Atrophy (SMA) last week. The powerful image was shared more than a thousand times and seen by at least one hundred sixty …
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