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Marfan Syndrome Newsletter
  • Sports and exercise cardiology: Highlights from the 2025 ACC Scientific Session 01 Jul 2025 18:34 GMT

    … . Don’t miss murmurs and Marfan syndrome. Don’t forget about stimulants … . Phelan highlighted genetic syndromes linked to thoracic aortic aneurysms (Marfan, Loeys-Dietz … “onion bulb” appearance of a Marfan syndrome aorta to identify those at …

  • Could Allopurinol Be Marfan’s Lifesaver? 16 Jun 2025 05:06 GMT

    … therapeutic potential for allopurinol in Marfan syndrome. Working alongside Isaac Rodríguez- … (EMA) criteria. Allopurinol for Marfan Syndrome Under European Union rules, orphan … mimic the clinical progression of Marfan syndrome, they identified key molecules …

  • EMA designates allopurinol as first orphan drug for the treatment of Marfan syndrome 19 May 2025 17:00 GMT

    … aneurysm that is typical of Marfan syndrome. So far, researchers have … Campuzano, researcher at CIBERER. About Marfan syndrome Marfan syndrome is a genetic connective tissue … drug for cardiovascular treatment in Marfan syndrome (and probably also for other …

  • Marfan syndrome increases risk of brain alterations 17 May 2025 02:20 GMT

    … reveals that inflammation associated with Marfan syndrome increases vulnerability to neurological diseases … , the research highlights that Marfan syndrome, a genetic disorder affecting … and improve treatment outcomes. Marfan syndrome affects the body' …

  • All you need to know about: Marfan Syndrome 02 May 2025 06:26 GMT

    … NY Public Library What is Marfan Syndrome? Marfan Syndrome is a rare genetic condition … signs and symptoms of Marfan syndrome? People with Marfan Syndrome often have a … like with Marfan Syndrome? With proper precautions, most people with Marfan Syndrome can …

  • Pursuing her dreams: Plainview Valedictorian receives #RAREis scholarship 30 Jun 2025 20:17 GMT

    … rare genetic disorder called Marfan Syndrome. The disorder is caused … not regulated correctly either, Marfan patients often have abnormally … case of Marfan’s because some Marfan patients cannot … My father was diagnosed with Marfan Syndrome a few years before …

  • Kenyan mum seeks help to raise KSh 3m for ailing daughter's life-saving surgery 30 Jun 2025 19:40 GMT

    … She was diagnosed with Marfan's Syndrome and a rare genetic … daughter was suffering from Marfan's Syndrome, a heart condition. …

  • Adventurous Teen With Marfan Syndrome Bounces Back 18 Feb 2025 01:58 GMT

    … testing, which showed Brandon had Marfan syndrome. It’s a genetic disorder … , eyes and skeleton. February is Marfan Syndrome Awareness Month, highlighting the genetic … intervention. Surgery to Breathe Better Marfan syndrome caused Brandon to develop severe …

  • Marfan Syndrome Market to See Unprecedented Growth by 2032 | DelveInsight 06 Feb 2025 15:17 GMT

    … . • Marfan Syndrome Therapeutic Assessment: Marfan Syndrome currently marketed, and Marfan Syndrome emerging therapies • Marfan Syndrome Market Dynamics: Marfan Syndrome market …

  • Pertinent Insights into the Imaging of Patients with Marfan Syndrome 05 Feb 2025 06:23 GMT

    … possibility of something more, like Marfan syndrome or some genetic aortic condition … s invaluable.” For patients with Marfan syndrome, Dr. Braverman emphasized complete assessment … can aid in differentiating between Marfan syndrome and other conditions, such …

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