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My beautiful son has the same devastating illness as Jesy Nelson's twins... but a simple £5 test when he was a baby could have changed everything
11 Jan 2026 14:25 GMT
… shocked.
Commonly known as 'floppy baby syndrome';, the condition affects around …
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Mum of brave girl, 3, knew something was 'wasn't right' after noticing she was 'floppy baby'
14 Oct 2023 08:22 GMT
… neurodevelopmental disorder. It is a syndrome characterized, in part, by … , was diagnosed with GAND Syndrome at 22 months old. The … noticed she was a ‘floppy baby’ and something did not … find more information on GAND Syndrome /; GATAD2B- associated neurodevelopmental …
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Jesy Nelson demands urgent change after twins' diagnosis as Health Secretary steps in
07 Jan 2026 00:37 GMT
… the condition, previously known as “floppy baby syndrome”, to the newborn heel prick …
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Mum's 'floppy baby' search just hours after birth cues confronting diagnosis
12 Oct 2022 05:22 GMT
… Prader-Willi syndrome was when she searched "floppy baby" … Key points:
Prader-Willi syndrome is a rare genetic disorder … been researching Prader-Willi syndrome for the past six … years researching Prada-Willi syndrome.
Previous studies have indicated …
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Floppy infant syndrome: Do your baby's muscles seem weak?
12 May 2024 21:09 GMT
… a sign of the floppy baby or floppy infant syndrome.
Medically known as … most babies who have this syndrome were born normal, but … all the babies with this syndrome, she explains that some … conditions including the Prader-Willi syndrome which leads to a …
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Dad receives ‘shocking’ diagnosis of rare, incurable disease after dismissing aches, pains
10 Dec 2025 18:42 GMT
… born in January 2023 with floppy baby syndrome, and his parents noticed that …
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Dad diagnosed with rare disease after dismissing aches and pains as 'aging'
10 Dec 2025 19:08 GMT
… arrived in January 2023 with floppy baby syndrome, and his mom and dad …
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WA baby hospitalized with botulism, leading to baby formula recall
11 Nov 2025 06:19 GMT
… expressions, weak muscles, or "floppy baby syndrome."
While botulism can be …
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Landmarks light up green for Myotonic Dystrophy Awareness Day
17 Sep 2025 00:26 GMT
… a baby is born with floppy baby syndrome, leading to the diagnosis of …
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Lithium: Wonder Drug or Evil Actor?
15 Sep 2025 18:58 GMT
… had a bad rap for “floppy baby syndrome” in newborn infants whose mothers …