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Kansas City invited to bring Halloween candy to 3-year-old Tucker Langford
26 Oct 2025 23:08 GMT
… rare skin condition known as epidermolysis bullosa along with a complicated heart … rare skin condition known as epidermolysis bullosa along with a complicated heart …
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Readthrough of premature stop codons for epidermolysis bullosa
17 Oct 2025 15:14 GMT
Dermatologic
Researchers at the Keck School of Medicine at the University of Southern California explored whether CC-90009 can promote readthrough in the two types of epidermolysis bullosa.
BioWorld Science Dermatologic
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Survey: Epidermolysis Bullosa Patients Frequently Use Cannabis for Symptom Management
25 Sep 2025 17:35 GMT
Chicago, IL: Patients with epidermolysis bullosa (EB), a rare blistering skin … of the study, “Cannabinoids for epidermolysis bullosa symptom management: A survey,” appears …
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'I do believe that EB has robbed me of a future, has robbed me of the life I should have lived'
26 Oct 2025 05:15 GMT
… living person in Ireland with epidermolysis bullosa – known as butterfly skin. EB … of the agonising skin condition epidermolysis bullosa, at the Irish premiere of …
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FDA expands B-VEC label to include patients from birth with dystrophic epidermolysis bullosa
15 Sep 2025 22:08 GMT
… patients from birth with dystrophic epidermolysis bullosa, broadening access beyond the prior … patients from birth with dystrophic epidermolysis bullosa (DEB), expanding on the … Study of Patients with Dystrophic Epidermolysis Bullosa. Am J Clin Dermatol. …
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Krystal Biotech's B-VEC for Dystrophic Epidermolysis Bullosa Gets Expanded FDA Label
15 Sep 2025 17:53 GMT
… patient population to include dystrophic epidermolysis bullosa (DEB) patients from birth. Patients … Study of Patients with Dystrophic Epidermolysis Bullosa. Am J Clin Dermatol. 2025 …
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DEBRA and Queen Mary partner to advance epidermolysis bullosa drug development
21 Aug 2025 11:43 GMT
… at advancing drug development for epidermolysis bullosa (EB).
The research collaboration will …
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Senate Resolution 181 Printer's Number 1272
25 Oct 2025 04:24 GMT
…
through 31, 2025, as "Epidermolysis Bullosa Awareness Week" in
20250SR0181PN1272 …
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BioMendics Launches TAMES-02 Clinical Trial for Innovative Epidermolysis Bullosa Simplex Therapy
07 Aug 2025 14:18 GMT
… with generalized intermediate to severe Epidermolysis Bullosa Simplex (EB Simplex).
EB Simplex …
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Chiesi Global Rare Diseases Spotlights the Profound Impact of Epidermolysis Bullosa in the Film “Living Between Pain and Hope” as part of “The Next Frontier,” a New Series Presented by the Biotechnology Innovation Organization
28 Jul 2025 12:00 GMT
… and Michael, both living with epidermolysis bullosa (EB), a rare and devastating … . Explore the series here. About Epidermolysis Bullosa Epidermolysis Bullosa (EB) is a rare and …
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