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- Teen organizes concert for 'butterfly children' 16 May 2008 06:59 GMT
... in Evansville to raise money for Sophie and Sam Schulz, children who suffer from epidermolysis bullosa — a rare skin disease that makes their skin blister and tear apart at ...
- Living a delicate childhood 16 May 2008 06:59 GMT
... Sophie, 7, has epidermolysis bullosa, a rare skin disease that leaves gaping sores. She has surgery twice a year ...
- Benefit concert set for tonight 15 May 2008 19:38 GMT
... p.m. tonight at Germania Maennerchor for Sophia and Samuel Schulz. The Schulz children have epidermolysis bullosa, a rare disease that makes their skin extremely fragile. Their skin blisters and tears ...
- Students Depart on Fundraising Bike Trek 14 May 2008 15:50 GMT
... Parry Garff said. They are doing all this to raise awareness and money for epidermolysis bullosa, a rare genetic disorder characterized by infection and blistering of the skin due to ...
- BYU students riding for a cause 13 May 2008 06:36 GMT
... as ambitious, though, as the students' plan to raise $100,000 to fund research for epidermolysis bullosa, a rare genetic disorder. The skin disease, which is characterized by burn-like infection and ...
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